• 2013,  crafts,  knitting,  Uncategorized,  wheelchair,  you know you've got CP

    You know you’ve got CP when…

    …knitting in your powerchair looks like this: A ball of black and silver sparkly yarn (Sirdar Firefly) with a hole in the middle balanced on the control of my powerchair. The joystick is through the middle sort of like a spindle. And knitting your manual chair looks like this: The same yarn balanced on my manual chair. The brake is acting as a spindle. The ball is slightly smaller here (it comes wrapped on a ring of card) and the central hole is larger.

  • 2013,  acceptance,  access,  argh,  attitudes,  CP related,  difficulties,  disability,  drama,  frustrations,  powerchair,  Quickie Salsa,  ranting,  sarcasm,  so you had a bad day,  things people say,  Uncategorized,  wheelchair

    A word of advice

    For those who don’t know me. Don’t try offering me unsolicited advice or helpful suggestions about my wheelchair and then go off on me when I tell you’re wrong and calmly explain the reasons why I do what I do and/or can’t do anything else. Telling me where you saw me cross the road is dangerous is one thing. Repeatedly screeching at me that I’m going to get myself killed when I tell you its the only place I can is upsetting. And talking to me like I’m stupid and telling me that I do have a choice and could cross the road elsewhere is another that shouldn’t happen. Suggesting…

  • 2013,  action3,  baclofen,  dream diary,  identity,  laterals,  personal,  perspective,  powerchair,  Quickie Salsa,  songs of my life,  thinking,  Uncategorized,  walking,  wheelchair

    A Dream Is A Wish Your Heart Makes…

    I’ve been doing a fair amount of writing (fiction) and the character I was writing about was thinking about the disney version of Cinderella. Specifically the song lyric “A dream is a wish your heart makes when you’re fast asleep.” And then I started thinking about it. I frequently remember my dreams. They are very detailed and often borderline surreal. I can remember dreams I had months or years ago although not usually when I had them. I also have a recurring dream. I’ve not had it for absolutely ages but it was the one that came to mind. I think taking baclofen might have something to do with the…

  • 2012,  action3,  Quickie Salsa,  ranting,  Uncategorized,  wheelchair

    Wheelchair Etiquette

    Every so often I see articles doing the rounds online about dos and don’ts for dealing with us wheelchair users.  I don’t agree with a lot of things those include.  I was thinking about writing my own version but basically it comes down to Be aware of the persons preferrence – a lot of these articles say you should get down on wheelchair height if at all possible when talking to a wheelie.  I prefer that people remain standing – or sitting whatever they were doing.  I’m not a fan of the crouched down beside me making a special effort thing.  I’m not just saying that because of the seat…

  • 100 days of writing,  2012,  disability,  freedom,  swimming,  Uncategorized,  wheelchair

    >Just Keep Swimming

    >Day 42 of 100. Just Keep Swimming Splash! Straight into the waterIt’s coolNot cold but definitely noticeableSoothing on too hot skinSinking down and downWet all your hairRefreshingAnd then keep your shoulders underSmile at the kids on the other sideSay hi to a friend and chat for a few minutes.Waves waves wavesUp and downUp and downThrown aroundBody surfingThe unexpected stormWatch the aqua aerobics groupTry and fail to copy their movementsSurrounded by waterStretch and savourAnd only thenDo you swimFront crawlA lazy attempt at breast strokeAnd a long float on my backA few kicks don’t achieve muchBut must be doneRight leg more than leftPeople think it’s just a swimBut it’s more than thatA…

  • 2012,  jay2,  jay3,  powerchair,  Quickie Salsa,  Uncategorized,  wheelchair

    >My new powerchair

    >[I’ve been trying to upload this with photos in it for two days now. For some reason it wouldn’t work so I’ve deleted them and will share them some other time. Just pretend there’s photos of my awesome chair in here] The new powerchair is great. I’m really enjoying it. Getting sick in the first week of having it and not being able to use it for a few days is seriously unfair. But such is life. There are a few small niggles but none are a big deal. One is that I had planned to use my Jay 2 deep contour cushion that I have in my manual in…

  • 100 days of writing,  2012,  powerchair,  Quickie Salsa,  spine align,  Uncategorized,  wheelchair

    >It’s The Most Wonderful Time of The Year

    >I got my new powerchair this afternoon! It’s a Quickie Salsa M with a jay3 backrest. And it’s red and silver. The silver part of that was a surprise. I’ll post more about it when I’ve had the chance to give it a good run. But so far I’m enjoying it. I didn’t know it was coming today but when I got up (after sleeping late) I saw I’d missed a call from the supplier and found out they could come in a few hours. I got in the shower after that, practically bouncing with excitement. And I was singing “it’s the most wonderful time of the year”. Badly. I…

  • 2012,  disability,  language,  Uncategorized,  wheelchair

    >The Meaning of Wheelchair User #wheelchair #language #disability #disability #CP

    >I’ve been thinking for a while that there needs to be a different term to wheelchair user. I spend 99% of my waking hours in my wheelchair. I can stand to transfer but I need to get my chair right by the bed or the loo or whatever. The thing I’m transferring to needs to be the right height and also stable. In the bathroom I have to have grab rails and with them I can take a couple of steps. If I stay in a hotel I have to a room with a wheel in / level access shower. That’s what I mean when I say “I’m a wheelchair…

  • action3,  Dad,  hospital,  jay2,  jay3,  laterals,  OT,  physio,  shoes,  spasticity,  spine align,  Uncategorized,  wheelchair

    >Details on my new seating

    >Two weeks ago I went to Wheelchair Services for a new assessment. Two very productive hours later I left with a completely pimped chair and all new seating. And it was so easy.  I didn’t have to fight for anything and didn’t need to argue my case at all – the therapist simply saw me and talked to me and made suggestions.  That was so different to my last assessment where I thought I was constantly having to push for things (and where I didn’t get what I needed looking back).  I’d actually made my Dad take the afternoon off work to take me so I had back up –…

  • action3,  frustrations,  jay2,  jay3,  lyrics,  OT,  pain,  physio,  spasticity,  Uncategorized,  wheelchair

    >Don’t Look Back In Anger

    >I went for my wheelchair assessment on Wednesday.  And it went really well.  The details and all that are for another entry as I’d like for that to be a positive entry. For now lets just say that I’m trialling a new seating configuration and the question of whether I need a new chair as well is on the backburner at present.  So far I like my new seating but I think there maybe a few niggles which need ironing out in the long run. The thing is though I can’t help feeling a little frustrated and even angry.  I was assessed there in 2009 and I told them certain…