• 2016,  action3,  Attempts at World Domination,  CP related,  falls,  Uncategorized,  you know you've got CP,  you know...

    You Know You’ve Got CP When…

    …you don’t know whether to post an “argh terrible disaster it’s all going wrong crisis.” status update or a “oh wow this just happened I rock” status update – and the two things relate to different parts of the same incident. So it was something like 11:30pm last night. I’m on the computer and beginning to think about bed but I’m waiting for something on here to finish. I decided to leave it on and go to the loo, start getting sorted.  I’m in the hall, almost to the bathroom when something happened to my manual chair and not only wasn’t I moving but it had dropped in one corner…

  • 2016,  Uncategorized,  you know you've got CP

    You Know You Have CP When…

    … you arrive at CAB, your supervisor lets you in and says “uh, Emma, you’ve got something pink on your footplate.” and offers to pick it up for you. And before you even see what it is you know it’s a pair of knickers. And just lamely say “it’s alright, they’re clean.” while tucking them in your handbag. And then giggle and tell your other colleague. Because why the hell not? In my defence my powerchair lives in front of the dryer and I’d gotten in it then swung round and fished for a fleece out of the dryer right before leaving the house. But it’s not much of an…

  • 2015,  sarcasm,  trains,  Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    …you get the sort of “reasonable adjustmemt”  or “making it easier for our disabled customers” type treatment you’d never have dreamed was possible or thought to ask for. So much so you’re almost scared to say yes to it.   I got to Reading yesterday and one of the assisted travel guys got me off the train from Didcot, walked with me across the station and got me on to the train to Waterloo.  The guard came over and asked where I was travelling to saying “don’t worry if they aren’t right there with the ramp at Waterloo, I’ll come and check on you.” Then there was an automated announcement…

  • 2015,  Uncategorized,  you know you've got CP

    You Know You Have CP When…

    …you’re glad the intercom at the doctors isn’t working (or they aren’t using it) because the click it makes when they first call always makes you jump involuntarily. Most people probably didn’t even notice it or they did but they didn’t pay it much attention. But it’s just nice to sit still without my whole body flinching every few minutes. Particularly when feeling rubbish like I was when I was there on Thursday. The bonus of that was that I also didn’t need to try and open the door myself or find someone to help me (the receptionists usually listen out for my name and come). And the sound of…

  • 2014,  Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    …whilst at a famous London landmark a child chooses your wheelchair as the thing he’s going to take holiday photos of. Sod the landmark, her chair’s got lights!* They’re resurfacing the road/path outside my house so I headed home a different way to usual. And doing so meant I had to go in the road a tiny bit (which along with it being a bit out of the way is why I don’t normally go that way). So I put the hazard lights on my chair on. As I did so I remembered this story from a month ago and thought “how the hell did I forget to blog about…

  • 2014,  Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    …you get really annoyed when people try to make everything that ever happens to you into a “disability thing” and assume that if you try to do something it’s got to be “because you’ve got CP.” Then you get half way through writing a blog entry about someone remembering you when you meet for the second time, months after the first time and the words “you know you’ve got CP when…” floated through your brain as it happened. Only to stop writing and delete it when you realise that you’re doing it too.  Assuming that it happened because of CP. It’s not (necessarily) a CP thing that she remembered me…

  • 2014,  Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    I’ve had my hair in all sorts of lengths, styles and colours over the years.  But it’s been over two years since I last dyed it and I’ve just about grown my roots out. When people commented on my outlandish hair they’d sometimes ask if people stared. I used to joke that I dyed my hair purple or blue or pink or shocking red because people would always stare at me because of my chair so why not have my hair a crazy colour and give them something to stare at.  Putting it on my terms rather than theirs.  The last time I dyed my hair purple (not the last…

  • 2014,  comments,  disability,  Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    Went to get my blood pressure checked (normal and I suspect I’ve now had “white coat hypertension” added to my records given how very very high it was when I saw a new to me GP last week) and have some blood taken. The results of the bloods came back a few days later as “normal” which isn’t the most reassuring thing ever as I’d rather be told what they actually are along with the fact they’re normal. But that’s something to take up with the GP at a later date rather than the receptionist giving me the results. Anyway I was talking to the healthcare assistant about the fact…

  • 2014,  my mother,  Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    …your mum comes round to help you do a few jobs and instead of getting her to help with your quest to declutter like she has the last few times she’s been here you have to ask her to brush your hair. Then you have to append this with the fact that this is the most important job for the day and it doesn’t matter if nothing else gets done while she’s there. And then she takes the brush and looks at your hair and declares that it’s so bad it might actually take all the time she’s got to spend with your to sort it. Because I can and…

  • 2013,  Uncategorized,  you know you've got CP

    You know you’ve got CP when…

    …half an hour before an appointment in your house finds you tidying up. Not to make the house look better (although that is a bonus). But because it occurs to you that they might need somewhere to sit. And you basically never sit on the sofa. Meaning it’s buried I use the sofa. I balance drinks, snacks and other stuff like my phone on the arm when I sit next to it in my wheelchair. And usually there will be a mix of books, knitting or crochet stuff, a fleece or two, an empty coke bottle or 4, sweet wrappers and maybe a wheatie on the sofa itself. I use…