• 2013,  CP related,  Family,  frustrations,  honesty,  shoes,  Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    …the shoes you call your ridiculously impractical shoes are the same sort as your able-bodied sister and mother frequently wear as sensible everyday ones. For years I’ve lived in trainers. But only a specific sort. So much so that the pair I have now is at least my third identical pair but come to think of it is probably actually my fourth. And I should probably buy a new (but still identical pair) because no matter how many times I look for something different I can never find it. The idea that Skechers might one day discontinue them secretly fills me with horror. Because no one else does shoes which…

  • 2013,  crafts,  knitting,  Uncategorized,  wheelchair,  you know you've got CP

    You know you’ve got CP when…

    …knitting in your powerchair looks like this: A ball of black and silver sparkly yarn (Sirdar Firefly) with a hole in the middle balanced on the control of my powerchair. The joystick is through the middle sort of like a spindle. And knitting your manual chair looks like this: The same yarn balanced on my manual chair. The brake is acting as a spindle. The ball is slightly smaller here (it comes wrapped on a ring of card) and the central hole is larger.

  • 2013,  C-A-B,  CP related,  powerchair,  Quickie Salsa,  sailing,  Uncategorized,  you know you've got CP

    You Know You Have CP When…

    …you get congratulated on still having the wheels on your powerchair. Twice. On separate days. …you go to say goodbye to the same person who congratulated you because they’re leaving the bureau and moving on to a new job. And amongst the “wishing you well” comments they make they include that they “hope your wheels don’t fall off” …you wear out all four if the castors on your powerchair in 14 months. Hence all the wheel falling off comments because it was a genuine possibility while I was waiting for the replacements. …your Dad books an accessible taxi to take you, him and your mum to your brother’s wedding. When…

  • 2013,  Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    …You go somewhere you’ve been literally hundreds of times over the years and discover they’ve made what you’re pretty convinced they thought were cosmetic changes (and possibly for safety) and in the process have screwed up their access. *** …you get to listen to five minutes of someone else’s mobile phone conversation. Because apparently the new place to have private conversations on your phone is the disabled loo. The look on their face when they realised they’d kept a wheelchair user waiting and that I’d heard most of her conversation was priceless. *** …you ask someone about access for something they’re planning and also double check it yourself just to…

  • CP related,  Quickie Salsa,  shopping,  Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    …something you buy regularly in the supermarket gets moved from the very top shelf to the very bottom shelf. And as you’re trying to put two packets in your basket all you can think is how much easier it was to reach it down from the top shelf. I am aware how completely ridiculous that sounds but its true! Must admit I laughed at that. The seat riser on my powerchair makes moving up to reach high things so easy. And was worth every penny. The only part of sainsburys that properly stumps my independent crip streak now is frozen food with its cabinets with doors that open outwards. But…

  • Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    …your wheelchair breaks and you don’t call the NHS out of hours repair service because its the weekend and it doesn’t seem bad enough to bother them. When the technician finally comes several days later he tells you to always call with that issue even out of hours because it needs sorting quick. In fact they consider the chair unusable with that problem. Then a year later you have the exact same problem on a Friday afternoon and they tell you to wait until Monday. Even when you push them and they say they’ll double check and call back the answer still ends up being you need to wait until…

  • 2012,  Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    …you go to a wedding and the story that you just have to blog isn’t about how gorgeous the bride looked (very) or how much you liked her dress (a lot) or how cool the homemade bunting the decorated the hall with was (so cool).  It’s about the disabled loo. Because it screamed “you know you’ve got CP when…” and cracked you up. My sister and I went to a wedding party on Saturday night.  It was a friend of ours who got married and I’d not seen her for over a year during which time she’s had a baby.  So it was lovely to see her and meet her…

  • Cheerful Stuff,  sailing,  Uncategorized,  you know you've got CP

    Laugh

    I’ve been trying not to sweat the small stuff so much lately. Given how much I swore when I got an email earlier that some of my Paralympic tickets need changing its safe to say its not worked as well as it could but it has made a difference. So here’s my new theory. Laughter Got a chance to sail but the wind is a bit scarier than you’d like? Take a friend on a buddy seat and go anyway. Find something to laugh about. When it gets a bit hairy? Swear. And then laugh When three waves hit you in the face one after the other your soaked to…

  • Uncategorized,  you know you've got CP

    You Know You’ve Got CP (and you’ve been to the Olympics) When…

    …despite being 30 and having been to London many times you go on the tube for only the second and third time ever. …you take a 40 minute longer train route into London so you can go straight from the train to the accessible bit of the tube. And it’s worth it, easy and exciting. …you’re so impressed with the access in your hotel room you consider cancelling the much closer and cheaper hotel rooms you have for the Paralympics to stay there again. …the fact you expected to be frisked by the airport style security but weren’t surprises you. …you mutter a lot about how unsafe it was the…

  • Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    …the staff at the pub move a table outside especially for you and your friend (who is also a wheelie although not a CPer) to have lunch at. We arranged to have lunch at the pub on the grounds that it’s lovely weather but somehow we both forgot that you can’t get up to their outside tables properly on wheels. If they were standard picnic tables It would be a bugger but doable. These are wooden tables with individual attached seats though. Not wanting to miss out in the sunshine and lunch combo we pointed that out to them. The staff member took our order and said she’d see what…