• 2017,  Action 4

    Random Bullet Points of Life

    Random bullet points of life are for the little things worth recording but probably not in need of an entry to themselves. I actually think several of these should have an entry to themselves but in the interest of catching up a bit and not forgetting things this will do. +It’s so long since I wrote a blog update! Lots of thoughts about blogging lately and probably some stuff to write about it but not today. + My new manual wheelchair has been a bit of a disaster. I couldn’t use it at all for the first two weeks I had it as it wasn’t safe. It’s still not as…

  • 2017,  action3

    The Changing of the Guard.

    In just over 12 hours I have an appointment with wheelchair services to have my new wheelchair fitted.  If all goes according to plan it comes home with me and my action 3 stays there.  Policy is that wheelchairs returned to them go to the workshop and get refurbished before being reissued.  I doubt they’ll even bother to look at mine because the reality is I use my wheelchairs to death before they get replaced and it’s fit for nothing but a trip to wherever it is dead wheelchairs go when they’ve served their time. I’m looking forward to it and very hopeful that the new set up will be…

  • 2017,  books and reading,  reviews

    One Summer In Tuscany by Domenica De Rosa

    Today I am kickstarting my return to book blogging by taking part in the blog tour for One Summer in Tuscany by Domenica De Rosa. And I don’t think I could have picked a better book! Patricia Wilson’s carefully composed ads for the writers’ retreat she runs at her thirteenth-century Italian castle promise so much. But while the splendour of their surroundings and chef Aldo’s melanzane never fail to wow the guests, huge maintenance bills and bad news from the bank threaten to close Patricia down. It’s make or break time for the Castello. Each of her seven aspiring authors arrives with the inevitable baggage alongside their unpublished manuscripts. But…

  • 2017,  Action 4

    A wheelchair related thought

    I’m very excited about my new wheelchair coming but talking to other people about what I’m getting and why and how wheelchair services works has been interesting.   There’s been a definite difference between how other disabled people have taken the news of what chair I’m getting (generally very positive) and how able-bodied people have taken the details of what chair I’m getting (quite negative but in a way that I suspect they think is supportive). At times this has been frustrating and even difficult. I won’t go into any more details because this isn’t meant to be a criticism of anyone or anything.   It’s been eye opening and…

  • 2017,  Action 4,  action3,  hospital,  jay2,  jay3,  lymphoedema,  spasticity,  wheelchair

    A new chair

    I’m getting a new manual wheelchair provided by the NHS. I had an assessment with a rehab engineer and an OT today.  There was some discussion and after a few minutes I said “So I am getting a new chair then?” And the engineer who is someone I’ve seen in clinic before said “Emma, the only reason we’re letting you go home in that chair is because we don’t have anything here to lend you and we can’t send you home without a chair. If we had something else you’d be in it.” They also got a new type of cushion out for me to try and the OT declared she…

  • 2017,  access,  BADD

    Not five minutes but five weeks

    Today is Blogging Against Disablism Day. For the last five weeks I’ve been dealing with a somewhat ridiculous access situation.  What I actually need should be incredibly straight-forward. I need to be weighed.  I am not allowed to go sailing until I can confirm my weight to the powers that be. That’s because they’re checking equipment safety. I have no problem with that.  You can buy scales in Argos for less than £30. But as a wheelchair user it’s not accessible to me. The accessible scales you can get cost over £1000. You can go to the GP to get weighed. I can’t. There isn’t considered to be a need…

  • 2017,  antidepressants,  books and reading,  Citalopram

    A brief update

    I swear I’m not giving up blogging but it does seem more and more like I am with how rarely I’m updating at the moment. I would write about my  plans for this blog and how I want to write more.  But as true as that is writing it doesn’t make me actually follow through on that plan. I do miss blogging but I miss the olden days of blogging (Diaryland and my first year or two on wordpress) more than I miss what blogging is now. It was more anonymous and more of a community and just nicer.  Not to say there aren’t positives to what blogging is now.…

  • 2017

    Random Bullet Points of Life

    For the little things worth recording but perhaps not worth a whole blog to themselves. I’ve been on Citalopram for four weeks now. It’s working although perhaps not as good as it could. I have high levels of spasticity right now which may or may not be due to the Citalopram. Certain other SSRIs have made it worse in the past so who knows? The sailing season has started but at the moment I’m not able to sail. We need to resolve a situation before that can happen and it’s proving tricky. Last week I went to see Billy Elliot the Musical with Rach.  It was really, really good. My…

  • 2017,  antidepressants,  Citalopram,  courage,  depression,  disability,  fluoxetine,  perceptions,  personal,  powerchair,  Quickie Jive,  Sertraline

    A Little Bit of Life

    (I am surprised that with nearly 2000 entries on this site I’ve never used the title A Little Bit of Life before) Two bits of not so brilliant but they could be much worse news are in my life at the moment.  I don’t think dominating my life is the right term but they are definitely big factors in everything right now.  And not easy. Life is never easy. I will start with the slightly easier one first – my powerchair is broken. The easiest way to explain it is to say it has a broken castor.  It’s more complicated than that because of the spider-trac but basically it’s not…

  • 2017,  books and reading,  reviews

    The Gingerbread House by Kate Beaufoy

    Today I am taking part in the blog tour for The Gingerbread House by Kate Beaufoy.  I received a free copy of the book from the publisher to review but this is my honest opinion. Nestled among cherry trees in a picturesque country garden, the Gingerbread House resembles an illustration from an old-world storybook. But beware! For in the fairy-tale, that s where the witch lives… Away from the city, with no distractions, the Gingerbread House seems like the perfect place to start work on a novel. That’s what former advertising copywriter Tess thinks when she goes there to live with Eleanor, her aged mother-in-law. But Eleanor is suffering from…